When Avery Canahuati was born on 11-11-11, her parents felt like they were the luckiest people in the world. That all changed just a few weeks later, when on Good Friday they got the news that little Avery would probably die before she turned 2.
"I just started screaming and um....it just doesn't seem real." said mother, Laura Canahuati.
Avery was diagnosed with spinal muscular atrophy, a rare genetic disorder. I causes progressive muscle degeneration and weakness, and eventually leads to death.
But Avery's parents are determined to make the best of what little time they have with their daughter.
"Mike always told me we've got all the time in the world to cry. We can cry, you know, when she's no longer here. But for now we want to enjoy the time we do have with her...and just make memories." said Laura Canahuati.
To help preserve those memories, Avery's mom and dad have created a blog with a bucket list of things to do with her before she dies.
Mike and Laura Canahuati plan to chronicle every moment to remember Avery, and to raise awareness of the disease that take her from them far too soon.
http://averycan.blogspot.com/
